About Us
100% of the Net Proceeds go directly to Visual Snow Syndrome research.
Visual Snow Syndrome (VSS) is a neurological disorder that impacts an individual’s vision, hearing, cognition, sensory processing, and quality of life. The defining characteristic of VSS is seeing visual snow, which can be described as seeing static, flickering dots, and flashing lights 24/7 (with your eyes both open and closed). Some describe it as trying to see in the middle of a snowstorm or through a snow globe that has been shaken up. VSS entails more than just seeing visual snow. People with VSS also commonly experience many other debilitating visual and non-visual symptoms, such as photophobia, palinopsia, photophobia, paresthesia, brain fog, anxiety, depression, and depersonalization.
The Visual Snow Initiative (VSI) is a nonprofit organization dedicated to global awareness, education, resources, patient advocacy, treatment development, and research for VSS. Our team has heard from people affected in over 93 countries. Together, we can support the cause and find solutions!